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📣 Raise awareness! Neonatal Marfan’s syndrome is a rare and severe form of Marfan syndrome, a genetic disorder that affects the connective tissues in the body. Marfan syndrome is usually diagnosed later in childhood or during adolescence, but when it presents in the neonatal period (the first month of life), it is considered Neonatal Marfan’s syndrome. This month, we’re shouting love for a sweet almost two-year-old named Paisley. Learn more about her rare medical journey with Neonatal Marfan’s.
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📣 Raise awareness! Neonatal Marfan’s syndrome is a rare and severe form of Marfan syndrome, a genetic disorder that affects the connective tissues in the body. Marfan syndrome is usually diagnosed later in childhood or during adolescence, but when it presents in the neonatal period (the first month of life), it is considered Neonatal Marfan’s syndrome. This month, we’re shouting love for a sweet almost two-year-old named Paisley. Learn more about her rare medical journey with Neonatal Marfan’s.
14.4K viewsJan 31, 2024
TikTokgoshoutlove_
Tiffany is mom to a child living with neonatal Marfan syndrome. Her real asks for kindness and understanding that some physical symptoms can be nearly invisible, yet very much life-changing. Learn more. https://marfan.org/conditions/neonatal-marfan/ | The Marfan Foundation
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Tiffany is mom to a child living with neonatal Marfan syndrome. Her real asks for kindness and understanding that some physical symptoms can be nearly invisible, yet very much life-changing. Learn more. https://marfan.org/conditions/neonatal-marfan/ | The Marfan Foundation
1.3K viewsFeb 20, 2024
FacebookThe Marfan Foundation
Marci Shelman and Tristan Dederscheck’s “miracle” baby boy, Riot, was diagnosed with a rare and life-threatening genetic disorder called neonatal Marfan syndrome. | 𝚃𝚑𝚎 𝙾𝚕𝚍 𝚆𝚘𝚛𝚍𝚜
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Marci Shelman and Tristan Dederscheck’s “miracle” baby boy, Riot, was diagnosed with a rare and life-threatening genetic disorder called neonatal Marfan syndrome. | 𝚃𝚑𝚎 𝙾𝚕𝚍 𝚆𝚘𝚛𝚍𝚜
3.4K views9 months ago
Facebook𝚃𝚑𝚎 𝙾𝚕𝚍 𝚆𝚘𝚛𝚍𝚜
What is Marfan syndrome?
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What is Marfan syndrome?
228 views7 months ago
YouTubeChildren's Healthcare of Atlanta Cardiology
Diagnose This Genetic Disorder? #mbbs
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Diagnose This Genetic Disorder? #mbbs
12.7K views3 months ago
YouTubeMBBS Physiology - Dr. Waqas Khan
New 2025 version: Marfan syndrome and related disorders National Diagnostic and Care Protocol
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New 2025 version: Marfan syndrome and related disorders National Diagnostic and Care Protocol
56 views10 months ago
YouTubeDrNerdMed
Marfan Syndrome Symptoms & Genetics
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Marfan Syndrome Symptoms & Genetics
199 views2 months ago
YouTubeDR ANJUM RASHID
2:14
🔎 What About Marfans Presented by Dr. David Saperstein #shorts
191 views4 months ago
YouTubeCenter for Complex Neurology, EDS & POTS
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My heart could explode at any moment 😳 #borndifferent #marfansyndrome #aneurysm #heartcondition #yt
19.4K viewsSep 23, 2025
YouTubetruly
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🚨 This Is the Deadliest Complication of Marfan Syndrome & MVP
2K views8 months ago
YouTubeThe Echo Classroom: Minks Koroma RDCS, RDMS, RVT
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Kids love showing off their hypermobile joints #hypermobile #marfan #invisibleillness #pediatrics
503 views2 months ago
YouTubeLiam Nelson
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Promising Results for 1-session Empowered Relief Study in People with Marfan Syndrome
37 views2 months ago
YouTubeStanford Pain Medicine
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NAIL REVEAL POSTED!!!! and that's what you missed on glee. Edit to add: It was because they suspected endocarditis! I am predisposed as I have Marfan Syndrome and a history of MRSA. It can present with splinter hemorrhages under the nails. But I'm all good, looks like it's just some other nasty infection that causes chest pain and coldlike symptoms and nausea and vomiting and aches and fatigue and brain fog and splinter hemorrhages and-
12.5M views8 months ago
TikTokspenshii
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Baby Name Ideas for the Logan Family | Newborn Name Inspiration
3.8M views1 month ago
TikTokafricanamericanfam
2:21
School morning routine with a newborn #dollmom Entertainment only, enjoy your hobby 😊 #motherhood #siliconebaby #reborndolls #newborn
21.3M views3 weeks ago
TikTokthe_dolls_arent_real
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🥺💜 #fyp #fypシ゚viral #laboranddelivery #birth #babyboy | baby
1.6M views2 weeks ago
TikTok_ambermckinney_
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Conociendo el Síndrome de Marfan en Niños
4.6M viewsAug 25, 2025
TikTokconnorstriumph
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Understanding Marfan Syndrome in Children | Clothing Size and Symptoms
8.1M viewsSep 29, 2024
TikTokconnorstriumph
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after a loooong 16 hour induction process, our little miracle arrived 🥹🩵🧸 i’ll do a full story time soon! 🫶🏼
13.7K views1 week ago
TikToksamantha_lindner
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Understanding Marfan Syndrome in Young Children
764.9K views11 months ago
TikTokconnorstriumph
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