Preparing for the school year with cystic fibrosis involves careful planning and advocacy. Since my daughter, Desi, started school, I’ve learned about how to best prepare Desi, her teachers, and ...

Using social media helps me cope with raising a child with cystic fibrosis, but I have to remember that it's not just my story I'm sharing. Here's how I make sure I share the right parts of my son's ...

Before my son was diagnosed with cystic fibrosis, my life lacked a profound sense of purpose. I did the typical routine a wife and a mom of three does. When I did have time for myself, I’d upload ...

Growing up as someone with cystic fibrosis, I obviously had some health issues, but I was able to play sports and do many things young boys like to do. I still enjoy playing sports and being active as ...

Although people with these mutations already are approved for Trikafta® in the United States, the study results provide further evidence of the efficacy of the triple-combination therapy for this ...

Living rurally with cystic fibrosis means every in-person appointment becomes a major undertaking of time, money, and energy. Telehealth once eased these burdens by connecting me to my care team ...

For most CFers, we just want to be “normal” but sometimes you must be careful what you wish for. I was unprepared for adulthood. Once comfortable with the idea of dying young, I now struggle to adapt ...

Trikafta made a big impact on my health when I started to take it soon after it was approved in 2019, but after a few years, I started to get sick again. I’m so happy that I can now take the newest ...

Before I was diagnosed with cystic fibrosis and while recovering from surgery for placement of a colostomy bag, I became very ill with influenza (or maybe it was COVID-19; we'll never know for sure).

When Betsy was diagnosed at 18 months, my job was to be consistent with her treatments until the day she would take these tasks on herself. We all know, that as our young children watch us, we are ...

On Dec. 18, the Fifth Circuit Court of the United States issued a decision in Texas v. United States, ruling the individual mandate unconstitutional but sending the case back down to the district ...

Childhood memories can often resemble a calendar filled with birthdays and holidays. Growing up with cystic fibrosis makes childhood look more like a timeline that is marked by doctor visits and ...